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Programs & Services

Neurofibromatosis Program

At the Phoenix Children’s Neurofibromatosis Program, we offer a wide range of services that will help your child throughout their neurofibromatosis diagnosis and treatment.

Medical Evaluation and Diagnosis

Our team of specialists conducts thorough assessments to accurately diagnose neurofibromatosis (NF) and determine its severity. Diagnosis of NF typically involves clinical evaluation and genetic testing and may include imaging studies.

Treatment Options

We provide access to the latest advancements in NF treatment, including surgical interventions, medical therapies and targeted therapies. Our team of specialists will create individualized treatment plans tailored to your child’s specific needs.

Genetic Counseling

Our genetic counselors help you and your family understand the genetic aspects of NF and provide guidance on family planning.

Psychological Support

Living with NF can be emotionally challenging. We offer counseling and support services to help you and your family members cope with the psychological aspects of the condition.

Education and Resources

We empower our patients with knowledge through educational resources and support groups, ensuring you have the information you need to make informed decisions about your care.

Cutting-Edge Research

We are committed to advancing the field of NF research. As part of our clinic, you may have the opportunity to participate in clinical trials and benefit from the latest breakthroughs in NF treatment.

Neurofibromatosis chart
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