NSGR - Rett Syndrome - a Multidisciplinary Approach
About the presenters:
Theresa A. Grebe, MD
Clinical Geneticist, Division of Genetics and Metabolism
Phoenix Children’s
Clinical Professor, Department of Child Health
University of Arizona College of Medicine
Terri Grebe, MD is a clinical geneticist in the Division of Genetics and Metabolism at Phoenix Children’s Hospital. She serves on the Barrow Craniofacial Center Team, as well in the Congenital and Genetic Skin Disorders Clinic and the Arthrogryposis Clinic at PCH. Her clinical research focuses on the delineation of craniofacial and neurogenetic disorders, including autism and epilepsy.
Dr. Grebe received her medical training at the Pennsylvania State University College of Medicine and completed her pediatric training in the Phoenix Hospitals Affiliated Pediatric Program, where she also served as chief resident. She was a Flinn Foundation Scholar during her medical genetics fellowship with the University of Arizona College of Medicine and St. Joseph’s Hospital. She is Clinical Professor in the Department of Child Health at the University of Arizona College of Medicine where she serves on the Curriculum Committee, Clinical Professor of Pediatrics at Creighton University School of Medicine and on the faculty of Mayo Clinic College of Medicine in Arizona.
Dr. Grebe is involved in both clinical and laboratory research and has presented at national meetings and coauthored over 60 articles on genetic conditions, including Cystic fibrosis, 22q11.2 deletion, Pallister-Hall, Cardio-Facio-Cutaneous, Prader-Willi, Williams and Noonan syndromes.
Dr. Grebe is a member of the American College of Medical Genetics and Genomics and previously served as the Chair of the Social, Ethical and Legal Issues Committee. She is certified in clinical genetics by the American Board of Medical Genetics.
In the community she serves as the medical director of the Minkoff Center for Jewish Genetics and is a medical ambassador for Make-A-Wish.
Guest Speaker:
Vinodh Narayanan MD
Child Neurologist, APNNA
Medical Director, Center for Rare Childhood Disorders, TGEN
Vinodh Narayanan, MD is a Child Neurologist based in Phoenix, Arizona, USA with a special interest in the genetic basis of neurological disease. He completed training in pediatrics at the Johns Hopkins Hospital (Baltimore MD), child neurology training at St. Louis Children’s Hospital (St. Louis MO), and a research fellowship with Dr. Gihan Tennekoon at the Johns Hopkins Medical Center.
After 13 years on the faculty at the University of Pittsburgh (Children’s Hospital), he moved to the Barrow Neurological Institute in Phoenix AZ. He launched his practice of pediatric neurology and neurogenetics (APNNA) in 2011, and took on the role of medical director of the Center for Rare Childhood Disorders (C4RCD) at The Translational Genomics Research Institute (TGen) in Phoenix AZ. As a result of a decades-long collaboration with Dr. Sakkubai Naidu (Baltimore MD), he has pursued studies into the biology and genetic treatment of Rett syndrome.