Parent Voices and Evidence-Based Neonatal Care: Where We’ve Been and Where We Need to Go
At the end of this presentation, participants should be able to:
- Understand limitations of traditional neonatal outcome measures
- Understand parents have different ideas about what matters
- Discuss incorporating stakeholder important outcomes in clinical trials is essential
- Discuss future clinical trials and societal resource allocation policies should reflect stakeholders’ priorities
Delayed CME credit is available for up to 4 weeks following the live session
Please note: providers must be affiliated with Phoenix Children's (medical staff and referring)
About the presenter:
Annie Janvier, BSc, MD, PhD, FRCPC
University of Montreal
Hôpital Sainte-Justine
Dr. Annie Janvier is a neonatologist, a clinical ethicist and an author working at the University of Montreal, Canada and Hôpital Sainte-Justine. She works first hand with patients and families confronted with difficult decisions such as end-of-life issues, and decision-making in the face of uncertainty.
At University of Montreal, she is member of the Bureau de L’Ethique Clinique and co-directs the Masters and PhD programs in Clinical Ethics. At Sainte-Justine hospital, she is an active member of the Clinical Ethics Unit and Palliative Care Unit of Sainte-Justine Hospital and is the director of the Research Unit dedicated to Clinical Ethics and “Partnering with Families”. Her main research interests in bioethics are decision-making for neonates and other incompetent patients with regards to the opinions and attitudes of caregivers and society. She investigates parental perspectives regarding intensive care decisions, death and disability. She has demonstrated many contrasts between provider and parental perspectives and investigates how to optimize communication between clinicians and patients/families. She also examines the positive impacts that follow the integration of “veteran” patients/parents in clinical care, teaching and research. In each of her projects she includes parents as co-investigators. She is author of many narratives, publications and books in clinical ethics and medicine.
Accreditation Statement:
This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME) through the joint providership of The University of Arizona College of Medicine - Tucson and Phoenix Children's. The University of Arizona College of Medicine - Tucson is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians.
The University of Arizona College of Medicine - Tucson designates this Live Activity for a maximum of 1.00 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.
Successful completion of this CME activity, which includes participation in the evaluation component, enables the learner to earn up to 1.00 MOC points in the American Board of Pediatrics’ (ABP) Maintenance of Certification (MOC) program. It is the CME activity provider’s responsibility to submit learner completion information to ACCME for the purpose of granting ABP MOC credit.
Relevant Financial Relationships Statement(s):
University of Arizona College of Medicine - Tucson Office of Continuing Medical Education adheres to the ACCME's Standards for Integrity and Independence in Accredited Continuing Education. Any individuals in a position to control the content of a CME activity, including faculty, planners, reviewers or others are required to disclose all financial relationships with ineligible entities (commercial interests). The CME office reviewers have nothing to disclose. All relevant financial relationships have been mitigated prior to the commencement of the activity.
Name of Individual | Individual's Role in Activity | Nature of Relationship(s) / Name of Ineligible Company(s) |
|---|---|---|
| John R. Hartley, DO, FAAP | Activity Director | Nothing to disclose - 10/16/2025 |
| Annie Janvier, MD, PhD, Professor of pediatrics | Faculty | Nothing to disclose - 09/07/2025 |
