Our Patient Family Advisors work with Phoenix Children’s leaders, providers and staff to develop resources for patients and families. These resources give you access to helpful tools created by families who’ve gone through a similar experience.

Use the following resources as you navigate your child’s healthcare journey.

Family Community Resource Guides

Barrow Neurological Institute (BNI):

  • 2023-2024 Patient and Family Resource Guide: Local and national parent resources and support groups for different disabilities and diagnoses, compiled by families
  • Your Visit: Parent-to-parent tips on how to get the most out of your child’s visit at the Barrow Neurological Institute at Phoenix Children’s
  • Su Visita: Consejos de padres para aprovechar al máximo la visita del niño en El Instituto Barrow de Neurología en Phoenix Children’s

 

Cardiovascular Intensive Care Unit (CVICU):

  • People Who Can Help: Contact information for organizations who can help with finances insurance, education, family support and additional services

 

Center for Cancer and Blood Disorders (CCBD):

 

Cystic Fibrosis (CF) Program:

  • Just Breathe badges: Available purple badges that communicate to other CF families that a person within their group is living with CF
  • Memory Jogger / Check List: Guidance on topics to discuss with your care team and space to take notes
  • Preparing for a Cystic Fibrosis Clinic Appointment: Simple tips and questions to help families organize their thoughts before a visit and make it easier to cover important health topics with the care team

 

Wellness Resource Guide:

  • Ways for parents or caregivers to focus on their own wellness