Patient and Family Advisory Councils
Our Patient and Family Advisory Councils as well as our Patient/ Parent Workgroups collaborate as a team to promote positive change throughout the Phoenix Children’s network. Here are some of our recent notable accomplishments:
Family Community Resource Guides
Our PFACs and PPWGs continue to develop resource guides for families based on their immediate and future needs which can be found on our website:
- BNI Parent-to-Parent Tips
- BNI Parent-to-Parent Tips (Spanish)
- Center for Cancer and Blood Disorders (CCBD) Resource Guide
- CVICU - People Who Can Help Guide
- Mental Health Resource Guide
- Wellness Resource
PFAC/ PPWG Year-End Virtual Meeting
Each year Phoenix Children’s stakeholders from the various PFACs — patients, families, administrators and physicians - come together with our CEO, Bob Meyer, to close out the year in celebration for all that these members have accomplished.
Other Projects
PFAC Dashboard
The PFACs are now able to preview the incremental change taking place within our system and track the overall progress of the goals set forth each year.
Provider Trading Cards
Inspired by our Animal Assisted Therapy (AAT) trading cards, this year the PFACs began to create a pilot for physician trading cards.
BNI Card
Our very first Neuro PFAC worked with BNI care teams and leadership to create a card that families can present to the ED and inpatient, which triggers a consult with a specialist.
Advocate for Telemedicine
A member of our Neonatology PFAC interviewed and met with Governor Ducey about the importance of telemedicine and how it is has made and incredible difference to overall care.
CVICU Privacy Curtain
The Heart Center Patient and Family Advisory Council (PFAC) recommended an “extra curtain” in the CVICU patient room to allow a private space for the parent/guardian.
CAB's Colorful Hallway
The Children’s Advisory Board recommended a more “friendly, colorful” hallway in our south connector which is used to transport patients and their families to procedures and treatments. This project is currently underway!
Just Breathe Badges
The Cystic Fibrosis PFAC designed and implemented “Just Breathe” purple badges, which may be requested upon entrance to the hospital. This badge indicates to another CF family that a person within their group is living with CF.
Parent-to-Parent Tips
Patient and Family Advisory Council members created “parent-to-parent” tips on preparing for outpatient clinic visits.