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… time at Phoenix Children’s Center for Heart Care is the smiling faces. From the moment Maddox arrived at the hospital … been just nine months since his family lost Maddox on May 19, 2022. They grieve for him every day, but they also … – he was 17 months old when the they learned a heart had become available for him. He received his transplant on Sept. …

… of her firstborn. Emerson, diagnosed in the womb with a complex congenital heart defect, survived for just over two hours after her birth in September 2021. But the family – including Emerson’s twin sister, Oaklyn – stays …

… did not know it at the time, Theo came into the world in 2016 with multiple broken bones. All his mother, Christina, … crying all the time no matter what they did to comfort him.  When Theo was four weeks old, Christina heard … brittle bone disease. Children with OI can come from families with no history of the disorder. “This was the …

… her son’s life: Dominic’s story Blog Epilepsy Genetics GRIN1 Neurocritical Care Neurology Patient and Family Advisory Council (PFAC) Seizures Barrow Neurological … holding his breath and turning blue. Sometimes, he would become unresponsive. Then one day, daycare called and said …

… Inflammatory Bowel Disease (IBD) Gastroenterology (GI) ​ Milestones are an exciting and challenging part of growing … to an adult patient, which usually occurs around age 18-21. The next milestone is transfer , the actual change in … This change can be challenging as the patient learns to become the expert in their condition and the primary voice in …

… airlifts and wait lists, a ‘Ray’ of sunshine makes people smile Patient Stories Diabetes Down Syndrome Endocrinology … failure, thyroid disease and more, you could also call 15-year-old Regan and his family brave, inspiring and … then, he’s had diabetes-related kidney failure and other complications. With faith and fortitude, the family makes it …

… simply different has played a huge role in helping her become a confident, optimistic source of support for other kids with similar conditions. In female babies born with cloaca, the … for a diagnostic test, Savanna met a patient named CM, age 12, who was having a similar procedure. CM had a long list …

… Overcoming multiple spinal conditions: Mia’s story Blog Center … in the Windy City of Chicago. She loved hanging out with family and friends and was always on the move, busying herself … health takes a serious turn One morning in late October 2014, Mia woke up and couldn’t stand straight. She was leaning …