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… to life-sustaining specialty medicines Blog Cystic Fibrosis Specialty medications Specialty Pharmacy Melissa has her … of two active and busy teenagers. Sarah is about to turn 18, and Mason is 15. Both kids have cystic fibrosis. Sarah … been hospitalized since her diagnosis and participates in competitive gymnastics with no limitations. Mason has only …

… as Spinal Muscular Atrophy (SMA) Awareness Month . This awareness every year provides a unique opportunity to … a rare degenerative disorder of motor neurons occurring in 1 out of 15,000 births with variable presentations in … disease modifying therapies that can change clinical outcomes and even result in normal motor development with early …

… Partners for life: Helping CF kids become healthy adults Blog Adult Transition Program Genetics Cystic Fibrosis   Just a few decades ago, children born with cystic fibrosis had a life expectancy of less than 15 years. Today, thanks to improved medical care and …

… New drug therapy helps Arizona children with rare liver disease Patient Stories Alagille syndrome Patient Stories … all day, every day. Phoenix Children’s patients Caden, age 11, and Drew, age 7 have wrestled with terrible itching … the boys and their families — Phoenix Children’s would become the first hospital in Arizona to prescribe pediatric …

… Transplant Organ Donation Transplant Hepatoblastoma Nash is strong. Just ask him, and he’ll flex his arm muscles and … During a seven-month stretch in 2022, Nash spent over 130 nights at Phoenix Children’s. He went through a cancer … poster, inspired by the Joshua 1:9 Bible verse: “This is my command – Be strong and courageous! Do not be afraid or …

… parents cave in and say, “yes,” just to keep the peace. This creates inconsistency at home and a yo-yo effect on the … bring increased stability and happiness at home.   Step #1 – Observe It sounds boring or unhelpful, but take a little … for children, but also for adults. It helps avoid the common stumbling block of inconsistency between caregivers. …

… He’s a survivor Blog Center for Cancer and Blood Disorders Survivorship Teenagers Cancer   In 2016, Sammy was 16 years old and on spring break in California … two siblings when he got the news. The nagging shoulder discomfort he’d been experiencing wasn’t due to the way the …

… and Advocacy. Deborah J. Tom, MD Deborah J. Tom, MD , is a neonatologist and serves as Chair of Phoenix Children’s … of neonatology and has expertise in treating neonates with complex medical diagnoses. Dr. Tom joined Phoenix Children’s medical staff in 1998 and the new Neonatology Division in 2020. She currently …