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Neuroblastoma What is neuroblastoma in children? Neuroblastoma is cancer that starts when immature nerve cells in the nervous system grow out of control. These cells are called neuroblasts. Over time, the out-of-control cells form a tumor. Neuroblastoma is the most common solid

Chemotherapy for Children What is chemotherapy for a child? Chemotherapy (chemo) is the use of medicines to treat cancer or kill cancer cells. Chemotherapy has been used for many years. It’s one of the most common treatments for many types of cancer. The groups of cancer therapy

Overview of Craniofacial Anomalies What are craniofacial anomalies? Craniofacial anomalies (CFA) are a variety of deformities in the growth of the head and facial bones. Anomaly is a medical term meaning different from normal. These abnormalities are present at birth (congenital)

At the end of this presentation, participants should be able to: Deepen understanding of family perspectives on uncertainty though hearing their personal stories and experiences Explore the Seven Domains of Sustained Uncertainty that families navigate Identify initial questions

Birth Injuries What is a birth injury? Sometimes during the birth process, the baby may suffer a physical injury that impairs function or structure of their body. This is sometimes called birth trauma or birth injury. It can occur during labor, delivery, or after delivery. Birth

Chronic Liver Disease/Cirrhosis What is cirrhosis? Cirrhosis is when scar tissue replaces healthy liver tissue. This stops the liver from working normally. Cirrhosis is a long-term (chronic) liver disease. The damage to your liver builds up over time. The liver is your body’s

Shoulder Pain and Problems What are shoulder problems? Shoulder pain and problems are common. There are many types of shoulder problems that are caused by injuries and sudden (acute) or long-lasting (chronic) inflammation of the shoulder joint. The shoulder is a complex joint

Congenital Heart Disease According to the American Heart Association, about 9 of every 1,000 babies born in the U.S. have a congenital heart defect. This is a problem that occurs as the baby's heart is developing during pregnancy, before the baby is born. Congenital heart defects

Open Neural Tube Defects (ONTDs) in Children What are open neural tube defects in children? Open neural tube defects (ONTDs) are problems with the way the brain, spinal cord, or spine forms while a baby is growing in the pregnant person’s uterus. These problems occur in about 1