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Fanconi Anemia in Children What is Fanconi anemia in children? Fanconi anemia is a blood disorder. The bone marrow either doesn't make enough blood cells or it makes abnormal blood cells. Bone marrow is the spongy material inside bones. It makes white and red blood cells, and

Emery-Dreifuss Muscular Dystrophy in Children What is Emery-Dreifuss muscular dystrophy in children? Emery-Dreifuss muscular dystrophy (EDMD) is one of the muscular dystrophies. These are a group of rare, inherited muscle diseases (myopathies). EDMD causes weakness in your child

First Aid for a Choking Baby Choking happens when an object or liquid gets stuck in the throat or airway. This can block the flow of air and cut off oxygen to the brain. A baby may have a weak cough and trouble breathing. Or they may not be breathing. If your baby is choking

Blood Clotting Disorders in Children What are blood-clotting disorders in children? Blood-clotting disorders are a group of conditions in which there is too much clotting. Blood clotting is a normal process. It stops you from bleeding too much when you have a cut or injury. Blood

Craniopharyngioma in Children What is craniopharyngioma in children? Craniopharyngioma is a brain tumor that’s not cancer (benign). A brain tumor is an abnormal growth of tissue in the brain. The brain is part of the central nervous system (CNS). The CNS also includes the spinal

Talking to Your Child About Gun Violence at School A child’s safety is the top priority for every caregiver. The news of a school shooting can trigger strong feelings in both adults and children. Even if your child hasn’t heard about gun violence on the news or through people

Langerhans Cell Histiocytosis in Children What is Langerhans cell histiocytosis in children? Langerhans cell histiocytosis is a rare disorder. It occurs when there are very high levels of a type of immune cell called a Langerhans cell. In the past, this disorder was thought to be

For Parents: What to Do if Your Child is a Bully It’s a call no parent wants to get: Your child bullied another child at school. But it happens a lot. About 1 in 5 children and teens ages 12 to 18 report that they were bullied over the past year. You don’t want to think about

Congenital Liver Defects What are congenital liver defects? Congenital liver defects are liver disorders that are present at birth. They are rare. These liver disorders usually block the bile ducts. This affects the flow of bile. Bile is a fluid made in the liver. It helps with

Diamond Blackfan Anemia (DBA) in Children What is DBA in children? Diamond Blackfan anemia (DBA) is a rare blood disorder. Children with DBA don't make enough red blood cells. These cells carry oxygen to all other cells in the body. Blood cells are made in the bone marrow, the