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… 1 in 100,000 babies born per year in the U.S. Brittany felt fortunate that the neurologist on-call when Brooke was … is the place where kids with serious medical conditions come.” Although Brooke still experiences daily seizures, … the trips they used to dream about. They’re on a quest to visit as many national parks as they can. They have already …

… Fetal Care Center Fetal Care Adalynn was born with complex medical needs that increased her risk for developmental delays. But every day, the now 2-year-old … The first signs of concern appeared in early pregnancy for Adalynn’s parents, Shawnté and Zach. A routine 12-week …

… Fought to Survive in the NICU, Her Mom Pumped Breastmilk For 38 days, newborn Sage fought for survival in the … well as little tricks that could help. For example, they recommended putting a small piece of clothing in the bed with …

… Center Research Fetal Care Lessons Learned from Baby’s Malformed Heart May Help Heal Others in the Future Before his … as an acronym for his full name – was diagnosed with such complex heart deformities that providers didn’t expect him … so many different specialists and tests and scans and bad news – sometimes they don’t know where to turn when they …

… Hypoplastic left heart syndrome Phoenix Children’s Center for Heart Care Kayla may technically only have half a heart, … and smiles, despite having had two open-heart surgeries before her first birthday. “You wouldn’t be able to tell the … every night,” she shared. When Kayla finally was able to come home, her parents were relieved but also scared. The …

… Getting back to active Blog Chest Wall Deformities Pectus Excavatum Slipping Rib Syndrome Chest … Because Chloe’s case was moderate, her doctor just recommended checking in every two years. Little did the family …