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… affected. Meia, who has a rare type of spina bifida called myelomeningocele (or open spina bifida), had a lesion at her … and legs, bowel and bladder problems, and an excessive accumulation of fluid in the brain known as hydrocephalus. …

… during a routine ultrasound. The news came as a shock. “My wife immediately started crying,” remembered Dylan’s dad, … which usually takes about a week. A few months later, he successfully had his palate surgery. The hardest part of …

… I felt safe. I was a new parent but immediately felt like my daughter was seen.” After some minor surgical repairs and … adaptation to limb replacements are significantly more successful at a younger age. Typically, the surgery is done … team, and I appreciate that Dr. Schaub listened to my concerns. It helped me manage my fears so I could help …

… had several heart defects, including noncompaction cardiomyopathy and holes in the atrial and ventricular chambers. … At Arizona’s only Level IV freestanding NICU , Adalynn had access to hundreds of pediatric experts who could give her …

… who was born with a rare birth defect called cloaca, accepting that her bathroom habits were simply different has … condition with her friends. “She asked me how I talked to my friends about it, and I told her I started with my kidney problems,” said Savanna. “As you become closer to …

… at 3 years old with generalized epilepsy, which included myoclonic jerks, absence, drop and tonic-clonic seizures. He … 24-hour EEG and more testing, Kaden was diagnosed with myoclonic astatic epilepsy , or Doose syndrome, a rare …

… education as a model for excellent comprehensive programs. My vision for the Phoenix Children’s GI program is to … the excellent clinical reputation as a foundation for our success, while expanding our focus on education, research, …