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91-100 of 235 Results Found
Article
Living with Osteogenesis Imperfecta: Theo’s medical journey
April 15, 2024
… their son.  In short order, Theo’s medical team solved the mystery of Theo’s pain and his multiple breaks. Theo was … in pulmonary function, hearing loss, physical therapy, occupational therapy and pain management.  Theo’s journey …
Boy in wheelchair, next to provider
Article
High School Senior Celebrates Cancer-Free Milestone
September 21, 2023
… by family, friends and Jedi Masters from the Jedi Training Academy he attended. He’s been cancer-free ever since. Brett … of Arizona. Brett also shares his story to support successful blood drives at his school and has raised money for …
Family smiling in Arizona landscape
Article
Jaxton’s journey – The first ever MELODY valve in mitral position
February 23, 2022
… were turned upside down when our baby was 23 weeks new in my womb.  After many doctor’s visits and ultrasounds, we had … atrioventricular septal defect (AVSD) . A complete AVSD occurs when there is a large hole in the center of the heart, … never be the same.   From what I understood at the time, my son was supposed to stay at Phoenix Children’s for 10 to …
Family of 4 posing in the leaves
Article
Kids and resilience: Needed now, more than ever
August 21, 2020
… connection with at least one grown-up who encouraged trust, autonomy and initiative. They had the ability to regulate … day, which allows for self-directed play, noticing successes and commenting on the effort required and failures …
Masked kid waving at camera
Article
Look before you lock: Preventing pediatric vehicular heatstroke deaths
June 16, 2021
By Liz Perez
… to school, working two jobs and other responsibilities my days were stressful, and my schedule often changed. Not … our memory to fail at a time when we least expect it. According to noheatstroke.org , 883 children have died due to … the official parenting website of the American Academy of Pediatrics, provides some safety reminders that …
Child alone in car
Article
Researcher Spotlights – February 2022
February 13, 2022
… the National Institutes of Health, and the American Academy of Cerebral Palsy and Developmental Medicine, among … alike. We are very fortunate we were able to recruit him to CCBD.”  – Mario Otto, MD, PhD, Director of the Center for … Hyperammonemic Encephalopathy in a Patient with Acute Myeloid Leukemia … Researcher Spotlights – February 2022 …
Article
Embracing Inner Strength and Community: Eashani's Inspiring Journey with Thalassemia
September 15, 2023
… but like most other people with this condition, it is my normal,” said 17-year-old Eashani. Reflecting on her … resilient demeanors. Swati shared, “If you interacted with my daughter, you would never know she has this condition. We … how to manage my life and have the same opportunity to succeed as any other person would. I feel very excited about …
Teen posing, looking over her shoulder
Article
The teen patient with a brain injury: Why a pediatric acute inpatient rehabilitation facility makes sense
March 18, 2021
… housed within an acute care pediatric hospital guarantees access to specialty providers and services who are all geared … have to deal with including peer group relationships (“Will my friends abandon me?”), self-sufficiency issues (“I’ve been fairly independent and now mom is sleeping at my bedside”), school reintegration concerns (“What if I need …
Teen girl in wheelchair taking a selfie
Article
Tom's Story
May 4, 2018
… again and dropped to the ground behind him. As his sister Amy watched his frustrated attempts, she began to notice a … filled with healium." Too sick to do much of anything, Tom occupied his time by staring at the balloon and trying to …
Article
Concierge services provide a bridge for families
April 8, 2022
… babies born in the United States have spina bifida, according to the National Organization for Rare Diseases . … for Norah,” Laurelin says. “I worried this was somehow my fault.” A Network of Care Before Birth   Laurelin was … and those few days were some of the most turbulent of my life up to this point,” Laurelin says. “There was a …
Toddler on floor, playing with toys

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