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Emery-Dreifuss Muscular Dystrophy in Children What is Emery-Dreifuss muscular dystrophy in children? Emery-Dreifuss muscular dystrophy (EDMD) is one of the muscular dystrophies. These are a group of rare, inherited muscle diseases (myopathies). EDMD causes weakness in your child

About Cancer Clinical Trials What are cancer clinical trials? Cancer clinical trials are research studies with people. They may be done by government agencies, educational organizations, private not-for-profit groups, or commercial businesses. Trials are used to check how safe

Craniosynostosis What is craniosynostosis? The skull is made up of 8 bones and joints where the bones of the skull meet (sutures). These sutures allow the skull to grow as an infant grows and develops. Over time, the sutures close and the bones fuse together. This forms the skull

Germ Cell Tumors (GCTs) in Children What are germ cell tumors in children? A type of cell that forms as a fetus (also called unborn baby or embryo) develops is called a germ cell. Germ cells are the cells that make the eggs (ova) in females and the sperm in males. Germ cell

Viral Hepatitis Overview What is hepatitis? Hepatitis is inflammation of the liver. The liver is located in the upper right part of the belly (abdomen). Hepatitis can be caused by a virus that leads to damage of liver cells. Hepatitis has 2 types: Acute hepatitis. This type

Food Allergy What is a food allergy? A food allergy is when your immune system has a bad reaction to a certain food. This is different from a food intolerance, which does not involve the immune system. This is true even though some of the same signs may be present. What causes a

Diphtheria What is diphtheria? Diphtheria is an illness caused by bacteria. There are two types: Respiratory diphtheria. This type affects the throat, nose, and tonsils. Skin (cutaneous) diphtheria. This type affects the skin. It was a common childhood disease in the past. A

Gastrointestinal Problems What might gastrointestinal problems mean in a newborn? A newborn's ability to eat and digest food is essential to growth and development. Most babies are able to absorb nutrients and have normal bowel movements after being fed. Gastrointestinal problems

Astrocytoma in Children What is an astrocytoma in children? An astrocytoma is a type of brain tumor. A brain tumor is an abnormal growth of tissue in the brain. The brain is part of the central nervous system (CNS). The CNS also includes the spinal cord. The main parts of the

Tricuspid Atresia What is tricuspid atresia? Tricuspid atresia (TA) is a heart defect present at birth (congenital). It occurs when the tricuspid valve doesn’t form, or only partly forms. Normally the tricuspid valve is located between the right upper chamber (atrium) and the