1271-1280 of 1290 Results Found
Conditions We Treat
… and contracture or stiffness of certain joints. Mucopolysaccharidosis Type I (Hurler Syndrome, Hurler-Scheie Syndrome) … Learn more about our Lysosomal Clinic . Mucopolysaccharidosis Type II (Hunter Syndrome) A lysosomal disorder, … Clinic . Mucopolysaccharidosis Type VI (Maroteaux-Lamy Syndrome) A rare lysosomal disorder with short stature …
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Ketogenic diet therapy for epilepsy care: Conner’s 26-year journey to becoming seizure free
… were wonderful with Conner. The genetic test results opened my eyes. I’ve joined a Facebook group of parents, and it’s …
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Remembering Maddox: The story of a heart warrior
… Meghan’s pregnancy with Maddox was picture-perfect – the anatomy scan at 20 weeks’ gestation didn’t reveal any heart …
Curriculum
… to gain an in-depth understanding of the basic/complex anatomy and physiology as well as common neonatal disorders. … Neonatal Intensive Care Unit (NICU) Research: Fellows have access to a large NICU population and database(s) for studies …
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Headache home monitoring improves patient care
Headache Home Monitoring benefits children with chronic migraines by allowing doctors to respond quickly with changes to treatments plans.
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Gwen’s 22q story – The brightest light
… of 22q are not inherited. Instead, the deletion typically occurs randomly during early fetal development. Most … decided she needed open heart surgery. The surgery was a success, and Gwen has completely recovered. Gwen also visits … when it comes to 22q. She always has answers to my questions.” Nicole knows that Gwen will be okay. She …
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A broken heart
… they don’t know where to turn when they have questions. My job as a nurse coordinator is to help them navigate this … weighing 6 pounds, 8 ounces, and measuring 20 inches long. According to his mother, he actually looked healthy. Five …
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Samantha’s Colorfully Courageous Journey
… and hazelnuts). The white bands have scannable codes that access medical records and patient details. Still others may … medical conditions. They remind 10-year-old Samantha of successfully navigated checkpoints along her unexpected … for helping other kids with her disease. “I really know my way around the hospital,” said Samantha, “from doctors’ …
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Bethanie’s cancer journey: A story of resilience, courage and triumph over all
… biopsy to confirm her diagnosis. I immediately called my wife, who was at home with our two children. She made the … perfectly. By combining them, we got everything done and accepted help from others when we needed it.” To learn more …
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Getting back to active
… fear of hospitals and needles – even fainting on several occasions. Her parents were thrilled with her care team’s … understand and mentally prepare herself for.” said Nicola. “My eyes filled up the day after surgery when Chloe woke up …
