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… alone: COVID-19 protocol prevented her husband, Jon, from accompanying her to the appointment. “I knew that ultrasound … a bear wearing the same kind of equipment Gwen would be using. “As the weeks went on after Gwen arrived, we were able … Children’s diagnosed Gwen with primary ciliary dyskinesia (PCD). A rare genetic disorder caused by defects in the tiny …

… populations, novel therapeutics and immunology. Dr. Patel completed his undergraduate studies at Emory University and … how research had the opportunity to help more than the single patient I was seeing at any given time. Research has … children with complex medical conditions. She worked on a PCORI grant [Patient-Centered Outcomes Research Institute] …

… Americans are living with cerebral palsy (CP) , the most common physical disability of childhood. Caused by brain … also describe the amazing new worlds they have discovered since. Both Abby and Makayla are under the care of the … more comfortably and even sleeps through the night. At 26 weeks, Abby suffered a stroke in utero (before her …

… for pediatric specialists who could manage her medical complexities and help Emy thrive. When they found the team … a child-led model. That means they let Emy take the lead, using what she is most interested in to maximize therapy … of your child,” explains Jessica.  Celebrate your baby’s upcoming arrival. Try not to let the joy of expecting a new …

… Blog Autoimmune Disease Liver Transplant Primary Sclerosing Cholangitis (PSC) Transplant Meet Adam, an amazing … my body for about 10 minutes. I thought I was dying. After coming to in the dark, I considered my mortality and what … design and hope to one day solve engineering puzzles. My ideal future consists of good health for me, my friends and …

… face on. This is much easier said than done – especially since many of us are anything but thrilled about online … important for kids to have a designated space for school – ideally somewhere other than their bedroom. Some families … of online school (and online everything), the stability and comfort of a routine are more important than ever. …

… children to now get 8 hours a day of screen time through a combination of virtual school, online video meetings with … example, we are asking the lenses of our eyes to focus on a single object (the computer screen) at an unvarying distance … minutes to stretch can also be helpful. While it may be not ideal, our children’s increased screen time has allowed many …

… Regan was diagnosed with Type 1 diabetes as an infant. Since then, he’s had diabetes-related kidney failure and other complications. With faith and fortitude, the family makes it … a home-based abdominal blood-filtering procedure. It’s not ideal for Regan since it uses dextrose (sugar), but Regan …