Epilepsy Program

Our collaborative epilepsy program customizes your child’s treatment plan, making use of the most advanced and appropriate treatment options for your child’s specific needs. Our team of epileptologists, neurologists, neurosurgeons and neuropsychologists work together to provide comprehensive care to ensure the best results.

Some of the specialized programs we offer at Barrow Neurological Institute at Phoenix Children’s include:

Comprehensive diagnostic services include:

  • Imaging: Neuroimaging is crucial for visualizing the brain to try and identify the underlying cause of epilepsy. Your child’s doctor may recommend various imaging tests, with magnetic resonance imaging (MRI) being the most common. MRI provides detailed images of the brain, helping us to detect any structural abnormalities that might explain your child’s epilepsy. Younger children typically require sedation for this test to ensure they remain still. Additionally, we offer advanced imaging techniques, including positron emission tomography (PET), functional and resting state MRI and single-photon emission computerized tomography (SPECT), to gain further insights into the brain function and structure.
  • Outpatient EEG Laboratory: A routine electroencephalogram (EEG) is an early step in diagnosis and management of seizures. This test evaluates brain wave activity to give your doctor a better understanding of your child’s condition. The test typically lasts between 20 and 40 minutes and requires the skill of one of our registered EEG technicians. The goal is to capture both wakefulness and sleep, so having your child come in ready to take a nap is best. Please let your doctor or the EEG technicians know if you have questions or concerns. We want the EEG to be a positive experience for you and your child.
  • Pediatric Epilepsy Monitoring Unit: This specialized unit is designed for children who have experienced events that may represent a seizure. It offers a comprehensive evaluation to assess seizure frequency, identify the type of seizures and potentially localize them for surgical intervention. Each room is equipped with video and audio recording capabilities, while an EEG records your child’s brain waves. By linking the recorded events with the EEG data, our team can provide an accurate diagnosis and develop an effective treatment plan.

Not only does our team provide exceptional specialized care for children with epilepsy, but we also train many of the epilepsy specialists who serve children in our region and beyond. Our Pediatric Epilepsy Fellowship program prepares physicians to provide advanced pediatric epilepsy care and to lead efforts in enhancing epilepsy management.

Additionally, our commitment to research drives us to discover better treatment and management strategies for epilepsy. Our epileptologists and neurosurgeons are actively involved in clinical research, contributing to new knowledge and improved patient care.

Frequently Asked Questions about Epilepsy

Epilepsy is a risk of recurrent unprovoked seizures. Many different conditions or syndromes can cause epilepsy.

A seizure is a change in brain activity caused by abnormal synchronous electricity in the brain waves. This abnormal electrical activity leads to changes in behavior and physical symptoms, such as convulsions.

Seizures can come in all shapes and forms. The most known seizures include full body stiffening and jerking with alteration of consciousness. Larger convulsive seizures are called generalized tonic-clonic seizures or grand mal seizures. During grand mal seizures, patients may bite their tongue or lose control of their bowel or bladder. However, seizures can also appear as unexplained postures; staring; movements of the mouth, eyes or hands; and changes in breathing patterns. It is important to talk to your neurologist about any symptoms or changes in behavior your child is having to come to an accurate diagnosis.

Talk to your doctor about the next steps. Sometimes an initial evaluation can help determine an underlying cause, but in most cases, no single cause is identified. The first step is anti-seizure medications to help prevent the risk of further seizures.

  • Water safety: No tub baths without direct observation by an adult. Showers only – with doors unlocked. No swimming without adult supervision, and a life jacket must be worn at all times when boating or participating in any water activity.
  • Bike or scooter riding, skateboarding, horseback riding: Must wear helmet at all times.
  • Climbing: Nothing higher than 10 feet (ladders, trees). No hanging upside down from jungle gyms or other playground equipment. Avoid having sharp edges in and around your home and look out for other dangerous home conditions. 
  • Driving: No driving, including all-terrain vehicles (ATVs), mini-bikes, four-wheelers, golf carts or any other motorized vehicle unless your healthcare provider has given prior approval. It is illegal to drive in Arizona for three months following an event of altered awareness.
  • Firearms: No hunting or handling of firearms.
  • Burns: Burns are a risk in the kitchen with hot or boiling water or hot oil, and your child may need to avoid these. Burns from hot tap water or shower water are a problem unless water heaters can be set to a safer temperature below 120°Fahrenheit. Devices such as hair curling irons or blow dryers could also increase the risk for burns and should be used with caution.
  • Tools: Power tools, lawn mowers and garden equipment may be dangerous if a person is at risk for seizures. Some hobbies could be dangerous as well. Make sure to assess the risks of a tool or task for your child and talk to your child’s doctor or neurologist about safe alternatives and activities for your child.

There may be other risks not covered here. Talk to your child’s doctor if you have any specific questions or concerns.

  • Keep calm and reassure other people who may be nearby.
  • Prevent injury by clearing the area around the person of anything hard or sharp.
  • Ease the person to the floor and put something soft and flat, like a folded jacket, under their head.
  • Remove eyeglasses and loosen ties or anything around the neck that may make breathing difficult.
  • Contrary to popular belief, it is not true that a person having a seizure can swallow their tongue. Do not put anything in the person’s mouth. Efforts to hold the tongue down can injure the teeth or jaw.
  • Turn the person gently onto one side. This will help keep the airway clear.
  • Do not hold the person down or try to stop their movements.
  • Time the seizure with your watch. If the seizure continues for longer than five minutes without signs of slowing down, call 911.
  • After the seizure, if they have trouble breathing, appear to be injured or in pain, or recovery is unusual in some way, call 911.

Here are a few things you can do to help someone who is having a seizure that appears as blank staring, loss of awareness, involuntary blinking, chewing or other facial movements:

  • Stay calm and speak reassuringly.
  • Guide the person away from dangers.
  • Block access to hazards, but don’t restrain the person.
  • If the person is agitated, stay a distance away, but close enough to protect them until full awareness has returned.

Consider a seizure an emergency, and call 911 if:

  • The seizure lasts longer than five minutes without signs of slowing down.
  • The person has trouble breathing afterwards, appears to be in pain or recovery is unusual in some way.
  • The person has another seizure soon after the first one.
  • The person cannot be awakened after the seizure activity has stopped.
  • The person became injured during the seizure.
  • The person becomes aggressive.
  • The seizure occurs in water.
  • The person has a health condition like diabetes or heart disease or is pregnant.

Related Epilepsy Services

Neurocritical Care Program Neurology Neurosurgery Pediatric Movement Disorders