Our clinic is an established Fragile X Regional Center with the National Fragile X Foundation (NFXF). Through a grant with the Centers for Disease Control, the NFXF has developed the Fragile X Clinical and Research Consortium (FXCRC).

The Fragile X Clinic at Barrow at Phoenix Children’s is an active participant in providing registry information to FXCRC with the ultimate goal of being able to foster the dissemination of scientific and clinical data among researchers and providers.

Information You Can Trust

Providing educational resources for parents and caretakers of children with Fragile X syndrome is an integral part of the care provided by the Developmental Pediatrics team. Ask your physician for those resources to help you better understand your child's condition.