Our mission is clear: to provide comprehensive, innovative, personalized care that empowers patients to lead fulfilling lives, free from the limitations of neurofibromatosis (NF).

Living with NF can be challenging, but at Phoenix Children’s Neurofibromatosis Clinic we provide comprehensive patient-centered care and compassionate support. We understand that each patient's journey with NF is unique, which is why we take a holistic approach to care, bringing together a team of specialists to address every aspect of the condition. We partner with our patients to empower them to take an active role in managing their health and well-being and prioritize open communication.

Our multidisciplinary team of world-class specialists includes neurologists, oncologists, ophthalmologists, genetic counselors, dermatologists and other experts who work collaboratively to provide personalized treatment plans. We are dedicated to advancing the field of NF research, offering cutting-edge treatments, and supporting patients every step of the way. Together, we can build a brighter future for NF patients and their families.


Why Choose Us?

  • Expertise: Our team includes recognized experts in the field of neurofibromatosis, ensuring your child receives the highest level of care.
  • Compassion: We are dedicated to providing compassionate care that addresses your child’s physical, as well as emotional, well-being. We foster a supportive and understanding environment, and we encourage open communication.
  • Convenience: Our clinic offers an integrated experience for all your NF-related needs, with access to all our specialists in one location.
  • Innovation: NF is a rare disorder, and not all healthcare providers are familiar with its complexities. Choosing our Neurofibromatosis Program ensures that you receive care from professionals who have a deep understanding of the condition. You will benefit from the latest advancements in treatment and care.

We are honored to be an affiliated member of the Neurofibromatosis Clinic Network (NFCN), established by the Children’s Tumor Foundation.

Expert Care

At Phoenix Children’s Neurofibromatosis Program, our expert team provides multidisciplinary care and gives your child access to specialists in neurology, genetics, oncology, ophthalmology and psychology. Our team of neurofibromatosis specialists includes:

  • Pediatric neurology
  • Medical genetics
  • Ophthalmology
  • Hematology-oncology
  • Orthopedic surgery
  • Cardiology
  • Neuropsychology
  • Dermatology
  • ENT (ear, nose and throat)
  • Plastic surgery