What to Expect

The transplant process may seem overwhelming, but you don’t have to navigate the journey alone. Phoenix Children’s provides coordinated, compassionate care at each stage, from your child’s referral through transplant and long-term follow-up. Through it all, your child remains at the center of all we do.

Referral and Evaluation

The transplant process starts with a referral from your child’s doctor. To begin, your child undergoes a series of tests and examinations by the transplant team. We want to ensure they are ready physically, mentally, and emotionally to handle the demands of an organ or bone marrow transplant.

The evaluation typically includes extensive diagnostic testing, including blood work, imaging and organ function tests. Consultations with other pediatric providers ensure that your child's body can handle a transplant. The care team reviews your child’s health history and support resources and flags any potential complications for further testing if needed.

Listing and Matching

Once your child is approved for a solid organ transplant, we add them to the appropriate organ-sharing registry. Living kidney donors may include a parent, a relative, a family friend, or even an altruistic donor who gives the gift of a kidney to help a child in need.

If your child needs a bone marrow transplant, our team determines the type of transplant needed and begins the process of identifying a donor. Potential bone marrow donors include the patient, a related family member or an unrelated donor found through a national registry.

Transplant Procedure

Waiting for a transplant call can be an overwhelming experience. You may feel hopeful one moment and anxious the next. Our team understands how emotional this process can be. We’re here to support your child and your family every step of the way.

Solid Organ Transplants

For solid organ transplants, when an organ becomes available things can move quickly. It's essential that the transplant team has your current contact information and alternate contacts in case they can't reach you. Always keep your device fully charged.

The transplant team’s call could come at any time of day. If your child can wait at home, we recommend keeping a packed suitcase ready so you can respond quickly when it's time. Bring your child’s medications to the hospital. The care team will explain which medications to continue or pause before surgery, and where to go when you arrive at Phoenix Children’s.

Bone Marrow Transplants

For children undergoing a bone marrow transplant, the process is a little different. Once a donor is identified and your child is medically ready, our team works with your family to schedule the transplant. You’ll receive clear instructions on when to arrive, what to bring and what to expect before, during and after the procedure.

Make caregiver arrangements in advance and have reliable transportation options. Whether your child is receiving a solid organ or a bone marrow transplant, the transplant team will guide your family through each step and ensure your child is fully prepared for the procedure.

Surgery and transplant procedures vary depending on the type of transplant, your child’s health and their unique needs. No matter the path, your child will be in expert hands with a team focused on their comfort, safety and recovery.

Recovery and Follow-up

After a heart, liver or kidney transplant, your child will begin recovery in one of Phoenix Children’s specialized units designed for close monitoring and healing. Our team keeps a careful eye on your child’s vital signs, manages pain and helps their body adjust to the new organ.

For children undergoing a bone marrow transplant, recovery takes place in our dedicated Blood and Marrow Transplant Unit. The unit features protective precautions, specialized nursing and advanced infection-prevention measures to create the safest environment possible for your child.

During this time, our nurses, transplant physicians and specialists work closely together to reduce the risk of complications and support your child’s healing. The team provides daily updates, hands-on education and emotional support to help you feel confident and prepared for the transition home when the time comes.

When Your Child Is Ready to Go Home

After your child is discharged, they continue to receive care through Phoenix Children’s Transplant Program. We support your child until they transition to adult-focused services.

Our team is available 24/7 to answer your questions, address your concerns and ensure you have everything you need to provide excellent care at home.

Your child will take many new medications to help their body accept the new organ and prevent infection. During the first few weeks after surgery, it is vital to protect your child from getting an infection. Avoid crowded indoor spaces and keep your child at home, except for medical visits.

The transplant team will want to see your child frequently for the first several months. They will perform blood tests and physical exams to track progress and catch any concerns early.  

If recovery continues smoothly, your child will return to the clinic less frequently over time. While your child will need regular medical care for the rest of their life, most children go on to live healthy, active lives after a transplant.