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Von Willebrand Disease (VWD) What is VWD? Von Willebrand disease (VWD) is an inherited disorder that affects the blood's ability to clot. What causes VWD? VWD is almost always inherited. This means it is passed from parents to children. People with the disorder may have low

Diamond Blackfan Anemia (DBA) in Children What is DBA in children? Diamond Blackfan anemia (DBA) is a rare blood disorder. Children with DBA don't make enough red blood cells. These cells carry oxygen to all other cells in the body. Blood cells are made in the bone marrow, the

Short Bowel Syndrome in Children What is short bowel syndrome in children? Short bowel syndrome is when the body has trouble absorbing nutrients from food because of a problem with the small intestine. It often happens to children who have had a large part of their small

Langerhans Cell Histiocytosis in Children What is Langerhans cell histiocytosis in children? Langerhans cell histiocytosis is a rare disorder. It occurs when there are very high levels of a type of immune cell called a Langerhans cell. In the past, this disorder was thought to be

Tongue-Tie (Ankyloglossia) in Children What is tongue-tie in children? Tongue-tie (ankyloglossia) is a problem with the tongue that is present from birth. It causes speech and eating problems in some children. The lingual frenulum of the tongue is a small fold of tissue that

Duchenne Muscular Dystrophy in Children What is Duchenne muscular dystrophy in children? Duchenne muscular dystrophy (DMD) is a genetic condition that weakens your child’s muscles. It is the most common muscular dystrophy, a kind of inherited muscle disease. DMD causes weakness