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Cystic Fibrosis and the Digestive System How does CF affect the digestive system? Children with cystic fibrosis (CF) have a protein in their cells that doesn't work right. The protein is called CFTR (the cystic fibrosis transmembrane regulator). CFTR controls the flow of water

Craniosynostosis What is craniosynostosis? The skull is made up of 8 bones and joints where the bones of the skull meet (sutures). These sutures allow the skull to grow as an infant grows and develops. Over time, the sutures close and the bones fuse together. This forms the skull

Microcephaly in Children What is microcephaly in children? Microcephaly is a condition where a baby's head is much smaller than normal. It is most often present at birth (congenital). Most children with microcephaly also have a small brain and an intellectual disability. Some