Resources

View our list of resources for families and patients with cleft and craniofacial disorders.

• American Cleft Palate Craniofacial Association (ACPA) — Brings together individuals and healthcare professionals who are interested in clinical care and research advancements for individuals with cleft and craniofacial conditions. ACPA, a nonprofit association, is unique because it has more than 2,500 members who represent more than 30 disciplines in 60 countries to support patients and families, and ensure the best outcomes.
• ACPA Family Services — Provides comprehensive information to educate patients and families.
• American Speech-Language-Hearing Association — Commits to ensuring that all people with speech, language and hearing disorders receive services to help them communicate effectively. Their website offers resources to help you understand communication and communication disorders.
• Centers for Disease Control and Prevention (CDC) — Shares facts about cleft lip and cleft palate.
• The Emily Center — Offers a free, public, health information library located at Phoenix Children’s. The library is staffed by highly skilled nurses to conduct individualized research for any family member.
• Medline Plus — Shares facts about cleft lip and cleft palate.
• Raising Special Kids — Exists to improve the lives of children with a full range of disabilities, from birth to age 26, providing training, information and individual assistance so families can become effective advocates for their children.