Our Lysosomal Storage Disease Treatment Center is the largest comprehensive multidisciplinary treatment center in Arizona, with over 130 patients receiving care. Our center provides diagnostic, evaluation, management, treatment, genetic counseling and care coordination for pediatric and adult patients with lysosomal storage diseases.
Our Lysosomal Storage Disease Center is devoted to remaining on the cutting edge of research and treatment, and providing comprehensive and compassionate care for all of our patients affected by these diseases. As the largest program in Arizona, our center combines advanced clinical care with opportunities for participation in clinical research and patient registries.
Our team takes a comprehensive approach to care that is broad-based across many medical specialties, including multiple physicians and support staff who work closely together within a network of pediatric and adult specialists. Our cohesive group of healthcare providers work together with the shared goal of providing high-quality, personalized care for our patients.
Patient Resources
- Fabry Support and Information Group (FSIG)
- National Fabry Disease Foundation
- "Joe Learns about Fabry Disease" by Dawn Laney (available through Amazon)
- "Dani Goes to Fabry Camp" by Dawn Laney (available through Amazon)
- "The Long Road to Fabry" by Abigail Carbone (written by a teenager with Fabry) (available on Amazon)
"Super Pompe Powers" by Dawn Laney (available on Amazon)